AFDSRC Family & Disability Publications | Other AFDSRC Publications

AFDSRC FAMILY & DISABILITY PUBLICATIONS

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In press / Submitted

Emerson, E., Honey, A., Madden, R., & Llewellyn, G. (submitted). The well-being of Australian adolescents and young adults with self-reported long-term health conditions, impairments or disabilities: 2001 and 2006. Australian Journal of Social Issues.

Honey, A., Llewellyn, G., Schneider, J., & Wedgwood, N. (accepted 15/2/08). Approaching adulthood with a chronic health condition: Professionals’ and young people’s perspectives. In D. Bennett, S. Towns, E. Elliott, & J. Merrick (Eds.), Challenges in adolescent health: An Australian perspective. Victoria, BC: Int Acad Press.

Mayes, R. (in press). Becoming a mother: The experience of women with intellectual disabilities. Australian Journal of Occupational Therapy.

Mayes, R., Llewellyn, G., & McConnell, D. (submitted). "That’s who I choose to be": The mother identity for women with intellectual disabilities. Women’s Studies International Forum.

2009

Mayes, R., & Llewellyn, G. (2009). What happens to parents with intellectual disability following removal of their child in child protection proceedings? Journal of Intellectual & Developmental Disability. 34(1), 92-95.

2008

Dew, A., Balandin, S., Llewellyn, G. (2008). The psychosocial impact on siblings of people with lifelong physical disability: A review of the literature. Journal of Developmental and Physical Disabilities, 20(5), 485-507.

Emerson, E., Honey, A. & Llewellyn, G. (2008). The well-being and aspirations of Australian adolescents and young adults with a long-term health condition, disability or impairment. Report for ARACY. http://www.aracy.org.au//AM/Common/pdf/Wellbeing.pdf

Emerson, E., Graham, H., McCulloch, A., Blacher, J., Hatton, C., & Llewellyn, G. (2008). The social context of parenting three year old children with developmental delay in the UK. Child: Care, Health & Development, 35(1), 65-70.

Emerson, E., & Llewellyn, G. (2008). The mental health of Australian mothers and fathers of young children at risk of disability. Australian and New Zealand Journal of Public Health, 32(1), 53-59.

Grace, R., Llewellyn, G., Wedgwood, N. Fenech, M., & McConnell D. (2008). Far from ideal: Everyday experiences of parents and teachers negotiating an inclusive early childhood experience in the Australian context. Topics in Early Childhood Special Education. 28(1), 18-30.

Llewellyn, G., Mayes, R., & McConnell, D. (2008). Towards acceptance and inclusion of people with intellectual disability as parents. Journal of Applied Research in Intellectual Disability, 21(4), 293-295.

Mayes, R., Llewellyn, G., & McConnell, D. (2008). Active negotiation: mothers with intellectual disabilities creating their social support networks. Journal of Applied Research in Intellectual Disability, 21(4), 341-350.

McConnell, D., Dalziel, A., Llewellyn, G., Laidlaw, K., & Hindmarsh, G. (2008). Strengthening the social relationships of mothers with learning difficulties. British Journal of Learning Disabilities, 37(1), 66-75.

McConnell, D., Mayes, R., & Llewellyn, G. (2008). Prepartum distress in women with intellectual disabilities. Journal of Intellectual & Developmental Disability, 33(2), 177-183.

McConnell, D., Llewellyn, G., & Mayes, R. (2008). Women with intellectual disabilities at risk of adverse pregnancy and birth outcomes. Journal of Intellectual Disability Research, 52(6), 529-535.

McConnell, D., Matthews, J., Llewellyn, G., Mildon, R., & Hindmarsh, G. (2008). "Healthy Start". A national strategy for children of parents with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 5(3), 194-202.

Riches, V., Parmenter, T., Llewellyn, G., Hindmarsh, G., & Chan, J. (2008). I-CAN: A new instrument to classify support needs of people with disability: Part 1. Journal of Applied Research in Intellectual Disability, DOI 10.1111/j.468-31.2008.00466.x

Riches, V., Parmenter, T., Llewellyn, G., Hindmarsh, G., & Chan, J. (2008). The reliability, validity practical utility of measuring supports using the I-CAN instrument: Part II. Journal of Applied Research in Intellectual Disability, DOI 10.1111/j.468-48.2008.00467.x

Wade, C., Llewellyn, G., & Matthews, J. (2008). Review of parent training interventions for parents with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 21(4), 351-366.

2006

McConnell, D., & Llewellyn, G. (2006). Health of mothers of school age children with disabilities. Australian and New Zealand Journal of Public Health, 30(10), 572-574.

Emerson, E., Hatton, C., Llewellyn, G., Blacker, J., & Graham, H. (2006). Socio-economic position, household composition, health status and indicators of the well-being of mothers of children with and without intellectual disabilities. Journal of Intellectual Disability Research, 50(12), 862-873.

Schneider, J., Wedgwood, N., Llewellyn, G., & McConnell, D. (2006). Families changed by and accommodating to the adolescent years. Journal of Intellectual Disability Research, 50(12), 926-936.

McConnell, D., Llewellyn, G., Matthews, J., Hindmarsh, G., Mildon, R., & Wade, C. (2006). Healthy Start: a national strategy for children of parents with learning difficulties. Developing practice: The Child Youth and Family Work Journal, 16, 34-42.

Sharp, N., Bye, R., Llewellyn, G., & Cusick, A. (2006). Fitting back in: Adolescents returning to school after severe acquired brain injury. Disability and Rehabilitation, 29 (12), 767-778.

Mayes, R,. Llewellyn, G., McConnell, D. (2006). Misconception: The experience of pregnancy for women with intellectual disabilities. Scandinavian Journal of Disability Research, 8 (2-3), 120-131.

McConnell, D., Llewellyn, G., & Ferronato, L. (2006). Context contingent decision-making in child protection practice. International Journal of Social Welfare, 15, 230-239.

2005

McConnell, D., & Llewellyn, G., (2005). Social inequality, the deviant parent and child protection practice. Australian Journal of Social Issues, 40 (4), 553-566.

Booth, T., McConnell, D., & Booth, W. (2005). Temporal discrimination and parents with learning difficulties in the child protection system. British Journal of Social Work.

Llewellyn G & McConnell D (2005). Parenting with learning difficulties. In G Grant, P Goward & M Richardson (Eds.), Learning Disability: A life cycle approach to valuing people.

Llewellyn, G., & McConnell, D. (2005) You have to prove yourself all the time: People with learning disabilities as parents. In Grant, G., Goward, P., Richardson, M., & Ramcharan, P. (Eds) Learning Disability: A life cycle approach to valuing people. (pp 441-467) Open University Press, New York

Llewellyn, G., McConnell, D., Thompson, K. & Whybrow, S. (2005) Out-of-home Placement of School-age Children with Disabilities and High Support Needs. Journal of Applied Research in Intellectual Disabilities, 18, 1-6

Booth, T., Booth, W. & McConnell, D. (2005) The prevalence and outcomes of care proceedings involving parents with learning difficulties in the Family Courts, Journal of Applied Research in Intellectual Disabilities, 18, 7-17.

Booth, T., Booth, W., & McConnell, D. (2005). Care Proceedings and Parents with Learning Difficulties: Comparative Prevalence and Outcomes in an English and Australian Court Sample. Child & Family Social Work.

2004

Mayes, R., Llewellyn, G. & McConnell, D. (2004). Becoming a mother: The experiences of women with intellectual disabilities. Journal of Intellectual Disability Research, 48, 381

McConnell, D., Mayes, R. & Llewellyn, G. (2004). Antenatal care and birth outcomes for women with intellectual disabilities (ID). Journal of Intellectual Disability Research, 48, 381.

Llewellyn, G., Balandin, S., Dew, A., McConnell, D. (2004) Promoting healthy, productive ageing: plan early, plan well. Journal of Intellectual & Developmental Disability 29(4), 366-369.

Booth, T., Booth, W. & McConnell, D. (2004). Parents with learning difficulties, care proceedings and the family courts: Threshold decisions and the moral matrix, Child and Family Law Quarterly, 16, (4), 409-421.

Llewellyn, G., Gething, L., Kendig, H. & Cant, R. (2004). Older parent caregivers' engagement with the service system. American Journal on Mental Retardation, 109(5), 379-396.

Dew, A., Llewellyn, G. & Balandin, S. (2004) Post-parental care: a new generation of sibling-carers. Journal of Intellectual & Developmental Disability, 29(2), 176-179.

Llewellyn G., Thompson K., & Whybrow, S. (2004). Activisim as a mothering occupation . In S. Esdaile & J. Olsen (Eds.), Mothering occupations: Challenge, agency and participation.(pp. 282-305) F.A. Davis Publishers.

2003

Llewellyn, G. (2003). Family decision-making in later life. In Nolan, M., Lundh, U., Grant, G., & Keady, J. (Eds.)(pp.145-182). Partnerships in Family Care: Understanding the caregiving career. Open University Press.

Llewellyn, G. & McConnell, D. (2003). Mothering capacity and social milieu. In S. Esdaile & J. Olsen (Eds.), Mothering occupations: Challenge, agency and participation. (pp.174-192) F.A. Davis Publishers.

Llewellyn, G., McConnell, D., Honey, A., Mayes, R., & Russo, D. (2003.) Promoting health and home safety for children of parents with intellectual disability: A randomised controlled trial Research In Developmental Disabilities 24(6) 405-431.

Llewellyn, G., Gething, L., Kendig, H., & Cant, R. (2003) Invisible carers: Facing an uncertain future. University of Sydney.

Llewellyn, G., McConnell, D., & Ferronato, L. (2003). Prevalence and outcomes for parents with disabilities and their children in an Australian court sample. Child Abuse and Neglect, 27, 235-251.

Llewellyn, G., McConnell, D., Mayes, R. (2003). Health of mothers with intellectual limitations. Australian and New Zealand Journal of Public Health, 27(1), 17-19.

Llewellyn, G., Thompson, K., Whybrow, S., McConnell, D., Bratel, J., Coles, D., & Wearing, C. (2003) Supporting families: Family well-being and children with disabilities. University of Sydney and the Spastic Centre of NSW.

 

McConnell, D., Llewellyn, G., Mayes, R., Russo, D., & Honey, A. (2003). Developmental profiles of children born to mothers with intellectual disability. Journal of Intellectual and Developmental Disability, 28(2), 1- 14.

2002

Llewellyn, G., & McConnell, D. (2002). Mothers with learning difficulties and their support networks.  Journal of Intellectual Disability Research, 46(1), 17-34.

Llewellyn, G., McConnell, D., Russo, D., Mayes, R., & Honey, A. (2002). Home based programs for parents with learning difficulties: Lessons from practice. Journal of Applied Research in Intellectual Disabilities, 15, 341-353.

Llewellyn, G., Thompson, K., & Fante, M. (2002). Inclusion in early childhood services: ongoing challenges. Australian Journal of Early Childhood, 27(3), 18-23.

McConnell, D., & Llewellyn, G. (2002). Stereotypes, parents with intellectual disability and child protection. Journal of Social Welfare and Family Law, 24(3), 1-21.

McConnell, D., Llewellyn, G., & Ferronato, L. (2002). Disability and decision-making in Australian care proceedings. International Journal of Law, Policy and the Family, 16, 270-299.

Strike, J., & McConnell, D. (2002). Parents with intellectual disability: Just the same, only different. Interaction, 15 (4), 11-15.

Strike, R., & McConnell, D. (2002). Look at me, listen to me, I have something important to say. Sexuality and Disability, 20 (1), 53-63.

2001

Llewellyn, G. (2001).Accommodation requirements for high support need residents with disabilities. Report to the Office of Community Housing. University of Sydney.

Llewellyn, G., McConnell, D., Honey, A., Mayes, R., & Russo, D. (2001). Healthy and safe. NSW parent-child health and wellbeing research and development project.  Report to the NSW Department of Ageing, Disability and Home Care Services. University of Sydney.

Spencer, M. (2001) Proceed with caution: The limitations of current parenting capacity assessments, Developing Practice, Winter, 16 - 24.

2000

Llewellyn, G., Thompson, K., & Fante, M. (2000). Young children with disabilities in NSW Children's Services. In NSW Department of Community Services, Insights into research. Four studies on early childhood issues and children's services. Sydney: Author.

McConnell, D., & Llewellyn, G. (2000). Disability and discrimination in statutory child protection proceedings. Disability and Society, 15 (6), 883-895.

McConnell, D., Llewellyn, G. & Ferronato, L. (2000). Parents with a disability and the NSW Children's Court. Report to the Law Foundation of NSW.  University of Sydney.

1999

Llewellyn, G., Dunn, P., Fante, M., Turnbull, L., & Grace, R. (1999). Family factors influencing out-of-home placement decisions. Journal of Intellectual Disability Research, 43(3), 219-241.

Llewellyn, G., & Fante, M. (1999).  Young children with disabilities in NSW Children's Services. Sydney: Office of Childcare, Department of Community Services.

Llewellyn, G., McConnell, D., Cant, R., & Westbrook, M. (1999). Support networks of mothers with intellectual disability: An exploratory study. Journal of Intellectual and Developmental Disability, 24(1), 7-27.

Llewellyn, G., McConnell, D., Grace, R., & Dibden, M. (1999). Parents with intellectual disability and older children: Strategies for support workers. Report to the Victorian Government Department of Human Services, Melbourne.

Llewellyn, G., Thompson, K., & Proctor, A. (1999). Parents with disabilities and early intervention services. International Journal of Practical Approaches to Handicap,  23 (1), 3-8.

1998

Llewellyn, G., McConnell, D. & Bye, R. (1998). Perception of service needs by parents with intellectual disability, their significant others, and their service workers. Research in Developmental Disabilities, 19 (3), 245-260.

McConnell, D., & Llewellyn, G. (1998). Parental disability and the threat of child removal. Family Matters, 51, 33-36.

1997

Llewellyn, G. (1997). Parents with intellectual disability learning to parent: The role of informal learning and experience. International Journal of Disability, Development and Education, 44 (3), 243-261.

Llewellyn, G., Bye, R., & McConnell, D. (1997). Parents with intellectual disability and mainstream agencies. International Journal of Practical Approaches to Disability, 21(3), 9-13.

Llewellyn, G., McConnell, D., & Bailey, M. (1997). Developing a screening instrument for teacher referral of students with special needs to therapy services. Australasian Journal of Special Education, 27(1), 4-17.

Llewellyn, G., & Poulden, D. (1997). Case Management. Sydney: University of Sydney.

McConnell, D., Llewellyn, G., & Bye, R. (1997). Providing services to parents with intellectual disability: Parent needs and service constraints. Journal of Intellectual and Developmental Disability, 22(1), 5-17.

1996

Llewellyn, G., Dunn, M., & Fante, M. (1996). Families with young children with disabilities and high support needs. Sydney: Ageing and Disability Department.

1995

Llewellyn, G. (1995). Relationships and social support: Views of parents with mental retardation. Mental  Retardation, 33 (6), 349-363.

Llewellyn, G. (1995). "First hand experience". Parents with learning difficulties. Disability, Pregnancy & Parenthood International, 11 (July), 10-12.

Llewellyn, G., & Brigden, D. (1995). Factors affecting service provision to parents with intellectual disability: An exploratory study. Australian and New Zealand Journal of Developmental Disabilities, 20 (2), 97-112.

Llewellyn, G., Mc Connell, D., & Bye, R. (1995). Parents with intellectual disability. Support and services required by parents with intellectual disability. Report to the Disability Services Sub-committee (DDSC) of the Standing Committee of Community Services and Income Security Administrators, Department of Human Services and Health, Canberra.

1994

Llewellyn, G. (1994). Parenting: A neglected human occupation. Parents' voices not yet heard. Australian Occupational Therapy Journal, 41(4), 173-176.

Llewellyn, G. (1994). Being a parent with intellectual disability: A battle against the odds, Community Bulletin, 18(1), 9-13.

Llewellyn, G. (1994). Generic family support services: Are parents with intellectual disability included? Mental Handicap Research, 7(1), 64-77.

Llewellyn, G., &  McConnell, D. (1994). The SRT Screening Instrument for Therapy Services in Schools.  Report to the NSW Department of Community Services and NSW Department of School Education, Sydney. University of Sydney.

1993

Llewellyn, G. (1993). Talking with parents with intellectual disability. In C. Johnston (Ed.), Does this child need help? Identification and early intervention. Sydney: Australian Early Intervention Association (NSW Chapter) Inc.

Llewellyn, G. (1993). Parents with intellectual disability: Facts, fallacies and professional responsibilities. Community Bulletin, 17(1), 10-19.

Llewellyn, G. & Maher, L. (1993). Assessment of school students' needs for therapy services. Australian Journal of Physiotherapy, 39(3), 181-185.

1990

Llewellyn, G. (1990). Parents with an intellectual disability: Perspectives from the literature. Australia and New Zealand Journal of Developmental Disabilities, 16(4), 369-380.