AFDSRC Family & Disability Publications | Other AFDSRC Publications | AFDSRC Conference Papers | AFDSRC Newsletter

AFDSRC FAMILY & DISABILITY PUBLICATIONS

Updated August 2008

Signifys a link to the report or click on to download Acrobat PDF Reader to your computer to view PDF documents

In press / Submitted

Emerson, E., Honey, A., Madden, R., & Llewellyn, G. (submitted). The well-being of Australian adolescents and young adults with self-reported long-term health conditions, impairments or disabilities: 2001 and 2006. Australian Journal of Social Issues.

Honey, A., Llewellyn, G., Schneider, J., & Wedgwood, N. (accepted 15/2/08). Approaching adulthood with a chronic health condition: Professionals’ and young people’s perspectives. In D. Bennett, S. Towns, E. Elliott, & J. Merrick (Eds.), Challenges in adolescent health: An Australian perspective. Victoria, BC: Int Acad Press.

Mayes, R. (in press). Becoming a mother: The experience of women with intellectual disabilities. Australian Journal of Occupational Therapy.

Mayes, R., Cant, R., & Clemson, L. (submitted). The home and caregiving: Rethinking space and its meaning. American Journal of Occupational Therapy.

Mayes, R., & Llewellyn, G. (submitted). What happens to parents with intellectual disability following removal of their child in child protection proceedings? Journal of Intellectual & Developmental Disability.

Mayes, R., Llewellyn, G., & McConnell, D. (submitted). “That’s who I choose to be”: The mother identity for women with intellectual disabilities. Women’s Studies International Forum.

McConnell, D., Matthews, J., Llewellyn, G., Mildon, R., & Hindmarsh, G. (accepted 9/5/08) Healthy Start. A national strategy for children of parents with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities.

2008

Dew, A., Balandin, S., Llewellyn, G. (2008). The psychosocial impact on siblings of people with lifelong physical disability: A review of the literature. Journal of Developmental and Physical Disabilities. DOI 10.1007/s10882-008-9109-5.

Emerson, E., Honey, A. & Llewellyn, G. (2008). The well-being and aspirations of Australian adolescents and young adults with a long-term health condition, disability or impairment. Report for ARACY. http://www.aracy.org.au//AM/Common/pdf/Wellbeing.pdf

Emerson, E., & Llewellyn, G. (2008). The mental health of Australian mothers and fathers of young children at risk of disability. Australian and New Zealand Journal of Public Health, 32(1), 53-59.

Grace, R., Llewellyn, G., Wedgwood, N. Fenech, M., & McConnell D. (2008). Far from ideal: Everyday experiences of parents and teachers negotiating an inclusive early childhood experience in the Australian context. Topics in Early Childhood Special Education. 28(1), 18-30.

Llewellyn, G., Mayes, R., & McConnell, D. (2008). Towards acceptance and inclusion of people with intellectual disability as parents. Journal of Applied Research in Intellectual Disability, 21(4), 293-295.

Mayes, R., Llewellyn, G., & McConnell, D. (2008). Active negotiation: mothers with intellectual disabilities creating their social support networks. Journal of Applied Research in Intellectual Disability, 21(4), 341-350.

McConnell, D., Llewellyn, G., & Mayes, R. (2008). Women with intellectual disabilities at risk of adverse pregnancy and birth outcomes. Journal of Intellectual Disability Research, 52(6), 529-535.

McConnell, D., Mayes, R., & Llewellyn, G. (2008). Prepartum distress in women with intellectual disabilities. Journal of Intellectual & Developmental Disability, 33(2), 177-183.

Wade, C., Llewellyn, G., & Matthews, J. (2008). Review of parent training interventions for parents with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 21(4), 351-366.

2007

Llewellyn, G. & Wedgwood, N. (2007). What do mothers want? Why mothers of children with disabilities send their children to mainstream early childhood settings. In Alexandra M. Columbus (Ed.), Advances in Psychology Research, Vol 49, 107-135. New York: Nova.

Spencer, M., & Llewellyn, G. (2007). Working things out together: A collaborative approach to supporting parents with intellectual disabilities. In C. Bigby, C. Fyffe & E. Ozanne (Eds.). Planning and support for people with intellectual disabilities. Issues for case managers and other professionals (pp.171-190). London: Jessica Kingsley Press.

2006

Booth, T., McConnell, D., & Booth, W. (2006). Temporal discrimination and parents with learning difficulties in the child protection system. British Journal of Social Work, 36(6), 997-1015.

Emerson, E., Hatton, C., Llewellyn, G., Blacker, J., & Graham, H. (2006). Socio-economic position, household composition, health status and indicators of the well-being of mothers of children with and without intellectual disabilities. Journal of Intellectual Disability Research, 50(12),862-873.

Mayes, R., Llewellyn, G., & McConnell, D. (2006). Misconception: The experience of pregnancy for women with intellectual disabilities. Scandinavian Journal of Disability Research, 8(2&3), 120-131.

McConnell, D., & Llewellyn, G. (2006). Health of mothers of school age children with disabilities. Australian and New Zealand Journal of Public Health, 30(10), 572-574.

McConnell, D., Llewellyn, G., & Ferronato, L. (2006). Context contingent decision-making in child protection practice. International Journal of Social Welfare, 15, 230-239.

McConnell, D., Llewellyn, G., Matthews, J., Hindmarsh, G., Mildon, R., & Wade, C. (2006). Healthy Start: a national strategy for children of parents with learning difficulties. Developing Practice: The Child Youth and Family Work Journal, 16, 34-42.

Schneider, J., Wedgwood, N., Llewellyn, G., & McConnell, D. (2006). Families changed by and accommodating to the adolescent years. Journal of Intellectual Disability Research, 50(12), 926-936.

Sharp, N., Bye, R., Llewellyn, G., & Cusick, A. (2006). Fitting back in: Adolescents returning to school after severe acquired brain injury. Disability and Rehabilitation, 29(12), 767-778.

2005

Booth, T., Booth, W. & McConnell, D. (2005). The prevalence and outcomes of care proceedings involving parents with learning difficulties in the Family Courts, Journal of Applied Research in Intellectual Disabilities, 18, 7-17.

Booth, T., Booth, W., & McConnell, D. (2005). Care Proceedings and Parents with Learning Difficulties: Comparative Prevalence and Outcomes in an English and Australian Court Sample. Child & Family Social Work, 10, 353-360.

Llewellyn, G., & McConnell, D. (2005). You have to prove yourself all the time: People with learning disabilities as parents. In Grant, G., Goward, P., Richardson, M., & Ramcharan, P. (Eds.), Learning Disability: A life cycle approach to valuing people. (pp. 441-467). Berkshire: Open University Press.

Llewellyn, G., McConnell, D., Thompson, K. & Whybrow, S. (2005). Out-of-home Placement of School-age Children with Disabilities and High Support Needs. Journal of Applied Research in Intellectual Disabilities, 18, 1-6.

McConnell, D., & Llewellyn, G., (2005). Social inequality, the deviant parent and child protection practice. Australian Journal of Social Issues, 40(4), 553-566.

2004

Booth, T., Booth, W. & McConnell, D. (2004). Parents with learning difficulties, care proceedings and the family courts: Threshold decisions and the moral matrix, Child and Family Law Quarterly, 16(4),409-421.

Dew, A., Llewellyn, G. & Balandin, S. (2004) Post-parental care: a new generation of sibling-carers. Journal of Intellectual & Developmental Disability, 29(2), 176-179.

Llewellyn, G., Balandin, S., Dew, A., McConnell, D. (2004). Promoting healthy, productive ageing: plan early, plan well. Journal of Intellectual & Developmental Disability 29(4), 366-369.

Llewellyn, G., Gething, L., Kendig, H. & Cant, R. (2004). Older parent caregivers' engagement with the service system. American Journal on Mental Retardation, 109(5), 379-396.

Llewellyn G., Thompson K., & Whybrow, S. (2004). Activisim as a mothering occupation. In S. Esdaile & J. Olsen (Eds.), Mothering occupations: Challenge, agency and participation. (pp. 282-305). Philadelphia: F.A. Davis.

Mayes, R., Llewellyn, G. & McConnell, D. (2004). Becoming a mother: The experiences of women with intellectual disabilities. Journal of Intellectual Disability Research, 48, 381.

McConnell, D., Mayes, R. & Llewellyn, G. (2004). Antenatal care and birth outcomes for women with intellectual disabilities (ID). Journal of Intellectual Disability Research, 48, 381.

2003

Llewellyn, G. (2003). Family decision-making in later life: the future is now. In Nolan, M., Lundh, U., Grant, G., & Keady, J. (Eds.), Partnerships in Family Care: Understanding the caregiving career. (pp. 145-182). Maidenhead: Open University Press.

Llewellyn, G., Gething, L., Kendig, H., & Cant, R. (2003). Invisible carers: Facing an uncertain future. University of Sydney.

Llewellyn, G. & McConnell, D. (2003). Mothering capacity and social milieu. In S. Esdaile & J. Olsen (Eds.), Mothering occupations: Challenge, agency and participation. (pp.174-192). Philadelphia: F.A. Davis.

Llewellyn, G., McConnell, D., & Ferronato, L. (2003). Prevalence and outcomes for parents with disabilities and their children in an Australian court sample. Child Abuse and Neglect, 27, 235-251.

Llewellyn, G., McConnell, D., Honey, A., Mayes, R., & Russo, D. (2003.) Promoting health and home safety for children of parents with intellectual disability: A randomised controlled trial Research In Developmental Disabilities, 24(6), 405-431.

Llewellyn, G., McConnell, D., Mayes, R. (2003). Health of mothers with intellectual limitations. Australian and New Zealand Journal of Public Health, 27(1), 17-19.

Llewellyn, G., Thompson, K., Whybrow, S., McConnell, D., Bratel, J., Coles, D., & Wearing, C. (2003). Supporting families: Family well-being and children with disabilities. University of Sydney and the Spastic Centre of NSW.

McConnell, D., Llewellyn, G., Mayes, R., Russo, D., & Honey, A. (2003). Developmental profiles of children born to mothers with intellectual disability. Journal of Intellectual and Developmental Disability, 28(2), 1- 14.

2002

Llewellyn, G., & McConnell, D. (2002). Mothers with learning difficulties and their support networks. Journal of Intellectual Disability Research, 46(1), 17-34.